Article
The Effects of Parenting Stress on the Parents Quality of Life of Parents of Children with Down Syndrome: Focusing on the Mediating Effect of Parents’ Perceptions
| e-ISSN | 2982-6845 |
| p-ISSN | 1226-4474 |
| Metrics | Views 0 / Downloads 0 |
Abstract
This study attempted to analyze the interactions between parenting stress, quality of life and positiveperceptions, as well as the impact of parenting stress on parents’ quality of life and parents’ perceptions.In addition, the study also aimed at elucidating the role of parents’ perceptions as a mediating effect onthe impact of parenting stress on their quality of life. Using PASW statistics 18, analyses was performed.The major findings of the study were as follows. First, the parenting stress of parents of children withDown syndrome had a statistically significant causal relationship with parents’ quality of life and theirpositive perceptions. Second, when the sociological characteristics of parents were controlled, the positiveperceptions of parents of children with Down syndrome had a partial mediating effect upon the causalrelationship between parenting stress and the quality of parents’ lives. This study found that not onlyparenting stress had a direct effect on parents’ quality of life and positive perceptions, but it also had amediating effect on the relationship between quality of life and positive perceptions. As a result, it wasconfirmed that parenting stress from raising children with Down syndrome affected parent positiveperceptions of children, and positive perceptions, which, in turn, affected the quality of parents’ lives.
Keywords
References
- 고일영, 김 철, 황경열, 권영욱 (2007). 장애아동 어머니의 장애인식과 장애아동 자녀에 대한 인식정도가 심리적 안녕감과 양육스트레스에 미치는 영향. 한국동서정신과학회지, 10(1), 27-36.
- 국민건강보험공단 (2013.5.27). 급증하는 『선천기형』, 주기적인 산전검사로 예방하세요[보도자료].http://www.nhis.or.kr/ portal/site/main/MENU_WBDCC01에서 5월 27일 인출. [ETC]
- 김미영 (2008). 다운증후군 자녀를 둔 어머니의 적응. 임상간호연구, 14(2), 19-29.
- 김은서 (2011). 지적장애자녀 양육경험에 대한 어머니의 긍정적 인식이 양육 스트레스에 미치는 영향: 가족탄력성을 매개변인으로. 연세대학교 교육대학원 석사학위논문.
- 김의연, 박영신, 김의철 (2013). 한국, 일본, 중국 대학생의 사회적 지원과 자기효능감이 스트레스 지각과 웰빙에 미치는 영향. 인간발달연구, 20(4), 105-127.
- 김수정 (2012). 장애아동 가족의 양육부담과 가족적응과의 관계에서 장애아동이 가족에 미친 긍정적 기여에 대한 부모 인식의 매개효과. 한국가족복지학, 35(3), 41-72.
- 류다형 (2012). 농촌지역 결혼이민자가정 어머니의 양육 스트레스, 양육행동, 스트레스 대처방식이 유아의 사회적 유능감에 미치는 영향. 서울대 학교 대학원 석사학위 논문.
- 박남주 (2013). 영유아다운증후군 자녀양육에 관한 질적 연구. 한남대학교 행정복지대학원 석사학위논문.
- 박혜준, Chung, G. H. (2010). 내 아이가 나를 키워준다: 장애아 어머니들의 자녀양육과 가족에 대한 이야기. 가족과 문화, 22(3), 1-29.
- 이유리 (2011). 지적장애 청소년 어머니의 자녀양육에 대한 긍정적 인식 수준과 영향 요인. 청소년학연구, 18(1), 297-321.
- 이현지, 김우호 (2011). 장애청소년 부모의 양육부담이 삶의 질에 미치는 영향: 가족의사소통과 가족기능의 매개효과를 중심으로. 재활복지, 15 (3), 131-153.
- 정금란 (2009). 초등학교 다운증후군 자녀를 둔 학부모의 양육경험에 관한 질적 연구. 한국교원대학교 대학원 석사학위논문.
- 최은경 (2009). 다운증후군을 가진 자녀를 둔 가족의 극복력. 연세대학교 대학원 박사학위논문.
- 황경열, 고일영, 용홍출 (2010). 장애아동 어머니의 개인특성, 장애수용 태도, 양육 스트레스가 장애아동 가족 삶의 질에 미치는 영향. 행동지체 부자유아교육, 53(2), 1-22.
- Abidin, R. R. (1995). Parenting stress index professional manual (3rd ed.). Lutz, Florida: Psychological Assessment Resources.
- Ahmed, S., Bryant, L. D., Ahmed, M., Jafri, H., & Raashid, Y. (2013). Experiences of parents with a child with down syndrome in Pakistan and their views on termination of pregnancy. Journal of Community Genetics, 4(1), 107-114.
- Baron, R. M., & Kenny, D. A. (1986). The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51(6), 1173-1182.
- Beach Center on Disability. (2005). Beach center family quality of life scale user’s manual. Lawrence, KS: University of Kansas.
- Behr, S. K., Murphy, D. L., & Summers, J. A. (1992). User’s manual: Kansas inventory of parental perceptions (KIPP). Lawrence, Kansas: Beach Center on Families and Disability.
- Berry, J. O., & Jones, W. H. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12 (3), 463-472.
- Blacher, J., Baker, B. L., MacLean, J., & William E. (2007). Positive impact of intellectual disability on families. American Journal on Mental Retardation, 112(5), 330-348.
- Bristol, M. M., Gallagher, J. J., & Schopler, E. (1988). Mothers and fathers of young developmentally disabled and nondisabled boys: Adaptation and spousal support. Developmental Psychology, 24(3), 441-451.
- Crnic, K. A. (1990). Families of down syndrome children: Ecological contexts and characteristics. In D. Cicchetti, & M. Beeghly, (Eds.). Down syndrome: The developmental perspective. (pp. 399-423). Cambridge, Mass.: Harvard University press.
- Crnic, K. A., Friedrich, W. N., & Greenberg, M. T. (1983). Adaptation of families with mentally retarded children: A model of stress, coping, and family ecology. American Journal of Mental Deficiency, 88(2), 125-138.
- Cummings, S. T. (1976). The impact of the child's deficiency on the father: A study of fathers of mentally retarded and of chronically ill children, American Journal of Orthopsychiatry, 46(2), 246-255.
- Cunningham, C. C. (1996). Families of children with down syndrome. Down syndrome Research and Practice, 4(3), 87-95. de Falco, S., Venuti, P., Esposito, G., & Bornstein, M. H. (2009). Mother-child and family-child emotional availability in families of chi
- Durmaz, A., Cankaya, T., Durmaz, B., Vahabi, A., Gunduz, C., Cogulu, O., & Ozkinay, F. (2011). Interview with parents of children with down syndrome: Their perceptions and feelings. The Indian Journal of Pediatrics, 78(6), 698-702.
- Flaherty, E. M., & Masters Glidden, L. (2010). Positive adjustment in parents rearing children with down syndrome. Early Education and Development, 11(4), 407-422.
- Folkman, S., & Moskowitz J. T. (2000). Positive affect and the other side of coping, American Psychologist, 55(6), 647-654.
- Gau, S. S. F., Chiu, Y. N., Soong, W. T., & Lee, M. B. (2008). Parental characteristics, parenting style, and behavioral problems among Chinese children with down syndrome, their siblings and controls in Taiwan. Journal of the Formosan Medical Associatio
- Gray, D. E. (2006). Coping over time: The parents of children with autism. Journal of Intellectual Disability Research, 50(12), 970-976.
- Gutierrez, S. R. (2006). A comparison of two parent education programs on the reduction of parent-child stress in mother-child relationships of Hispanic migrant farmworkers (Doctoral dissertation). The University of Arizona.
- Hassall, R., Rose, J., & McDonald, J. (2005). Parenting stress in mothers of children with an intellectual disability: The effects of parental cognitions in relation to child characteristics and family support. Journal of Intellectual Disability Research,
- Henn, C. G., & Piccinini, C. A. (2010). Paternal experience and paternal involvement in the context of the down syndrome. Psicologia: Teoriae Pesquisa. 26(4), 623-631.
- Hodapp, R. M. (2007). Families of persons with down syndrome: New perspectives, findings, and research and service needs. Mental Retardation and Developmental Disabilities Research Reviews, 13(3), 279-287.
- Hornby, G. (1992). A review of fathers’ accounts of their experiences of parenting children with disabilities. Disability, Handicap and Society, 7(4), 363-374.
- Hsiao, C. Y., & Van Riper, M. (2011). Individual and family adaptation in Taiwanese families living with down syndrome. Journal of Family Nursing, 17(2), 182-201.
- King G., Zwaigenbaum L., Bates A., Baxter, D., & Rosenbaum P. (2012). Parent views of the positive contributions of elementary and high school-aged children with autism spectrum disorders and down syndrome. Child: Care, Health and Development, 38(6), 817-8
- King, L. A., Scollon, C. K., Ramsey, C., & Williams, T. (2000). Stories of life transition: Subjective well-being and ego development in parents of children with down syndrome. Journal of Research in Personality, 34(4), 509-536.
- Lam, L. W., & Mackenzie, A. E. (2002). Coping with a child with down syndrome: The experiences of mothers in Hong Kong. Qualitative Health Research, 12(2), 223-237.
- McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The double ABCX model of adjustment and adaptation. Marriage and Family Review, 6(1-2), 7-37.
- Paczkowski, E., & Baker, B. L. (2008). Parenting children with developmental delays: The role of positive beliefs. Journal of Mental Health Research in Intellectual Disabilities, 1(3), 156- 175.
- Stoneman, Z. (2007). Examining the down syndrome advantage: Mothers and fathers of young children with disabilities. Journal of Intellectual Disability Research, 51(12), 1006- 1017.
- Summers, J. A., Poston, D. J., Turnbull, A. P., Marquis, J., Hoffman, L., Mannan, H., & Wang, M. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49(10), 777-783.
- Tadei, S. R. (2012). Room 47: Down syndrome - a new father’s diary (1st ed.). Viera Press.
- Taunt, H. M., & Hastings, R. P. (2002). Positive perception in families of children with developmental disabilities. American Journal on Mental Retardation, 107(2), 115-127.
- Taylor, S. E. (1983). Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist, 38(11), 1161-1173.
- Taylor, S. E., Lichtman, R. R., & Wood, J. V. (1984). Attributions, beliefs about control, and adjustment to breast cancer. Journal of Personality and Social Psychology, 46(3), 489-502.
- Turnbull, A. P., & Turnbull, H. R. (2001). Families, professionals, and exceptionality: Collaborating for empowerment (4th ed.). Upper Saddle River, NJ: Merill/Prentice-Hall.
- Van Riper, M. (2000). Family variables associated with well-being in siblings of children with down syndrome. Journal of Family Nursing, 6(3), 267-286.
- Van Riper, M. (2007). Families of children with down syndrome: Responding to “a change in plans” with resilience. Journal of Pediatric Nursing, 22(2), 116-128.
- Van Riper, M., Ryff, C., & Pridham, K. (1992). Parental and family well-being in families of children with down syndrome: A comparative study. Research in Nursing & Health, 15(3), 227-235.